This morning I called our pediatrician. I spoke with the nurse to let her know what had happened over the weekend in detail. She told me that because of the seizures I should contact our neurologist. She also stated that she would send a message to our doctor and if she had any questions, she would contact me. I then called the neurologists office and left a message with his nurse. She called back about an hour later and I again explained our events from the weekend in detail. She was wanting more specifics. For example, she was asking whether Eva had a cough or runny nose, if her ears seemed to be bothering her, if her throat was sore or swollen, if she was running a fever. After answering her questions, she then advised me that it sounded like she had more of a respiratory infection, virus, or viral infection. She also said that even if a child has multiple EEG's, the results are only correct 40% of the time. That means if anyone is tested having epilepsy with an EEG, less than half of the diagnosis's are correct. Wow. Finally she said IF the symptoms continued, I should see my pediatrician. So here we are again, back to not knowing what is really going on.
This is what we have decided that we definitely need to do - one - finding another video monitor during sleep time and two - video record the next seizure if possible when it happens.
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