Smiles on all Faces

We are still healthy- which is always great news.  Seizure free for over 10 days and counting.  Not only is that great news but we have also received positive phone calls.


The first was from Kristina with the state.  She stated that Eva's SSI and HHW paperwork is processing.  They will be reviewed by the "team" and she will let me know if everything is approved.  What this is we are awaiting is supplemental or Special Needs Insurance.  It is required for the state to give all children with special needs their own independent coverage pertaining to their disability.  She also stated that if approved they will back-date the coverage to December 2011.  So my first thought was her "staycation" in January and it will be covered.  Then it went to - Ear tubes-covered.  IDI-covered.  Cardio-echo tests, EEG, Ultrasounds, X-Rays - all covered!  The only song that popped in my head was "R-E-L-I-E-V-E, find out what that means to me, R-E-L-I-E-V-E, all hospital visits are free..."

So now on to the second phone call - her name was Sharron from IDS or Indiana Deaf School.  She was scheduling an appointment for Eva for another hearing screening test.  After explaining to Sharron our experiences with ENT and Riley's hearing screenings, she recommended an Auditory Brainstem Response Test.  This test will measure the brain's response to sound.  They will also measure the brainwaves the ear produces when it hears sounds.  Wires again will be placed on her forehead and behind her ears.  They will also place earphones on and in the ears.  Through all of this, we are hoping that she will be sleep deprived and will fall fast asleep.  It is scheduled in the middle of April at prime nap time and will take over two hours.  She also said that the test results will be discussed after the test is completed.  We will also receive a hard copy in the mail.  If Eva does not pass any part of the test, Eva will be offered services from IDS.




The last share is about our walk today.  We went to the park - as Abigail calls it - the "big slide" park.  Eva was enjoying her cheerios and juice while I was pushing Abigail on the swing.  Then, I was helping her with the monkey bars and noticed that Eva had a huge smile on her face while she was admiring us.  I could just tell that she wanted to join in on the fun instead of her mid-morning snack.  So I took her out and stood her up against the ladder by the monkey bars while Abigail was playing "try to find me" through the windows.  As I watched Eva's concentration side-stepping around the ladder, to the right, then left, then around the other side, I was picturing it being summertime three months away.  I am hoping that she will be able to not use her three points of contact to keep balance on just two feet.  I am also hoping that she will be walking out of her stroller unassisted to join the fun.  I know those days are soon and the smiles will remain for years to come.