I was just looking back and I have been writing on our journal for over a year. This time last year, Eva had been full force in PT, trying to get her torso and legs strong enough for her to sit on her own and eventually crawl. She had gotten that retched cast off the last week of October and in the process had a horrible rash which caused seizures and a bad case of roseola. Our life last year was difficult. It was a emotional roller coaster, trying to find out answers to our multiple unknown questions. Looking back, now, I feel so much more knowledgable and unbelievably fortunate to what I have gained in a year. I have a much better understanding of Eva, who she is and what she is capable of becoming. Now, don't get me wrong. If we do not expect her to be able to complete a HS degree, then she won't. But anyone that knows us understands that that is not how it is going to be. Eva will be just as successful as we expect her to be. We know that she will accomplish as much as we push, encourage, and thrive with and for her. Her accomplishments during just this past year shows us she will never give up, and neither will we. She is limitless.
Monday, December 17, 2012
More Dancing & IDI Appt. Friday
So much fun happens when the girls stay at Granny & Pappa's house overnight. Her older sisters got to play the new Just Dance 4 and what I have been told and what I saw, she was just trying to join in on the fun.
Also, Eva has another appointment coming up on Friday with the IDI doctor. I had to take her to the lab just this past Friday to get her blood drawn for this appointment. They wanted another accurate immunoglobulin count (white blood cells) and a CBC done. Since she had been on Septra for almost three months, we are only hoping her immune system has be producing more cells so that she will not require a transfusion.
I was just looking back and I have been writing on our journal for over a year. This time last year, Eva had been full force in PT, trying to get her torso and legs strong enough for her to sit on her own and eventually crawl. She had gotten that retched cast off the last week of October and in the process had a horrible rash which caused seizures and a bad case of roseola. Our life last year was difficult. It was a emotional roller coaster, trying to find out answers to our multiple unknown questions. Looking back, now, I feel so much more knowledgable and unbelievably fortunate to what I have gained in a year. I have a much better understanding of Eva, who she is and what she is capable of becoming. Now, don't get me wrong. If we do not expect her to be able to complete a HS degree, then she won't. But anyone that knows us understands that that is not how it is going to be. Eva will be just as successful as we expect her to be. We know that she will accomplish as much as we push, encourage, and thrive with and for her. Her accomplishments during just this past year shows us she will never give up, and neither will we. She is limitless.
I was just looking back and I have been writing on our journal for over a year. This time last year, Eva had been full force in PT, trying to get her torso and legs strong enough for her to sit on her own and eventually crawl. She had gotten that retched cast off the last week of October and in the process had a horrible rash which caused seizures and a bad case of roseola. Our life last year was difficult. It was a emotional roller coaster, trying to find out answers to our multiple unknown questions. Looking back, now, I feel so much more knowledgable and unbelievably fortunate to what I have gained in a year. I have a much better understanding of Eva, who she is and what she is capable of becoming. Now, don't get me wrong. If we do not expect her to be able to complete a HS degree, then she won't. But anyone that knows us understands that that is not how it is going to be. Eva will be just as successful as we expect her to be. We know that she will accomplish as much as we push, encourage, and thrive with and for her. Her accomplishments during just this past year shows us she will never give up, and neither will we. She is limitless.
Tuesday, December 11, 2012
Meeting Santa - Year 2
So we did our annual breakfast with Santa again. I was under the assumption that Abigail would again cry and Eva would probably not want anything to do with Mr. (huge beard whe's never seen before or at least could remember) Claus. We arrived and sat towards the back of the restaurant which just happen to pass the Claus's. I was walking with Abigail and she stopped dead in her tracks and said, "I am going to talk to Santa, bye!" What am I to say but, go right ahead. She got right on his lap and said she wanted a watch and a camera. Of course, my four year old wants a watch and camera. After her meeting, we proceeded to the table. We ordered our food and I took them back to talk to the Claus's. It was very easy - with some sister help.
I couldn't figure out what Eva wanted "more" of but when we got back to the table, she was very thirsty. After our meeting, we ate our breakfast and then left, but of course, we had to take one last group shot.
Hope all of you have a safe, healthy and a very Merry Christmas!
I couldn't figure out what Eva wanted "more" of but when we got back to the table, she was very thirsty. After our meeting, we ate our breakfast and then left, but of course, we had to take one last group shot.
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| Abigail and her "I can do what I want smile" |
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| Elizabeth was so proud of the picture she made for Santa! |
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| All our girls! |
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