October 15, 2012
All,
A friend of mine told me about a message that was posted on Facebook. I could not agree with it more. With Laura being out of town right now I am experiencing a lot of different things and have different perspective.
“When you are a special needs parent you learn to appreciate the little accomplishments that most take for granted. This is very gratifying and awesome. There are days however that you sit and hear a conversation of "typical" things that most deal with and you start to feel a bit isolated and it can bring you down a bit knowing that some of the things they speak of may never happen for your child. I then remind myself of how much richer and fuller my life is than most because they do not get the experiences that I share and the layers of rewards that come with those small accomplishments. For this I am truly grateful.”
Scott
Tuesday, October 30, 2012
Monday, October 29, 2012
One month Sick-free!
It has been a month since we last visited our IDI specialist. During our visit, He looked over my" Eva Calender" spreadsheet and decided to prescribe her with Septra. She has been taking it since September 30th. It has been a daily dosage of one teaspoon at night. I can only say that this has tremendously helped with her immune system. We have been illness free for a month! I hope when we get a blood draw in December the white blood counts is as good as they seem to be now.
Information obtained from www.webmd.com:
This medication is a combination of two antibiotics: sulfamethoxazole and trimethoprim. It is used to treat a wide variety of bacterial infections (such as middle ear, urine, respiratory, and intestinal infections). It is also used to prevent and treat a certain type of pneumonia (pneumocystis-type).
This medication should not be used in children less than 2 months of age due to the risk of serious side effects.This medication treats only certain types of infections. It will not work for viral infections (such as flu). Unnecessary use or misuse of any antibiotic can lead to its decreased effectiveness.
Also, I wanted to update her verbal/nonverbal communication. She is currently seeing two different speech therapists. They both work on the same concepts. One in specific knows more sign and continues to work with her on that. Eva is also starting to mimic her lips with those speaking to her to gain that verbal control that she must have in order to make those sounds herself. For example, if you say "cow says moooo", she will pucker her lips to mimic the moooo sound yet no sound will come from her, just the movements. This is definite progress. We are starting to believe that with the actions and progress she is making, apraxia is assumable not present. She is as some say moving forward.
Information obtained from www.webmd.com:
This medication is a combination of two antibiotics: sulfamethoxazole and trimethoprim. It is used to treat a wide variety of bacterial infections (such as middle ear, urine, respiratory, and intestinal infections). It is also used to prevent and treat a certain type of pneumonia (pneumocystis-type).
This medication should not be used in children less than 2 months of age due to the risk of serious side effects.This medication treats only certain types of infections. It will not work for viral infections (such as flu). Unnecessary use or misuse of any antibiotic can lead to its decreased effectiveness.
Also, I wanted to update her verbal/nonverbal communication. She is currently seeing two different speech therapists. They both work on the same concepts. One in specific knows more sign and continues to work with her on that. Eva is also starting to mimic her lips with those speaking to her to gain that verbal control that she must have in order to make those sounds herself. For example, if you say "cow says moooo", she will pucker her lips to mimic the moooo sound yet no sound will come from her, just the movements. This is definite progress. We are starting to believe that with the actions and progress she is making, apraxia is assumable not present. She is as some say moving forward.
Wednesday, October 24, 2012
Moments
Children. How do we put the moments into words. Some may say they remember their first tooth, the first steps, saying mama or dada. Those simple one time moments are written down in the baby book, talked about by family members then life continues. Other moments are cherished with planned parties, birthday dinners, Sunday brunches. We as parents chose to remember the positive times and tend to block out the negative ones which we comprehend as learned lessons.
Tonight, I had a moment. It was a simple moment but definitely a moment. It was almost as big as the first tooth (but that was not a positive experience). I was doing our normal nightly going to bed routine: Take a bath, get pj's on, play for about 15 minutes, change diaper, get medicine, place in bed. After the first three were completed, I said to the other girls "time to clean up ladies, I need to put Eva to bed". Eva looked at me and walked to her room. I quickly followed her to see what she was going to get into since I just finished cleaning up her room. She glanced over her shoulder which I assume to see that I was still there. She continued into her room and sat down on the floor where we usually change her diaper. She laid down and took the position for me, on her own. I did not have to call her name. I did not have to help her to the floor. I did not have to lead her away from a book to get her over to me. It was magical. She understood and comprehended what I was saying to the other girls and did what we routinely do. There was no fuss. So, I changed her diaper, put her into bed, gave her her medicine folowed by her nightcap and shut the lights. It was a moment. So, when others have their moments, mine will be slightly different. Simple. Not unique. Fortunately for me, writing them all down makes it easier to access.
Tonight, I had a moment. It was a simple moment but definitely a moment. It was almost as big as the first tooth (but that was not a positive experience). I was doing our normal nightly going to bed routine: Take a bath, get pj's on, play for about 15 minutes, change diaper, get medicine, place in bed. After the first three were completed, I said to the other girls "time to clean up ladies, I need to put Eva to bed". Eva looked at me and walked to her room. I quickly followed her to see what she was going to get into since I just finished cleaning up her room. She glanced over her shoulder which I assume to see that I was still there. She continued into her room and sat down on the floor where we usually change her diaper. She laid down and took the position for me, on her own. I did not have to call her name. I did not have to help her to the floor. I did not have to lead her away from a book to get her over to me. It was magical. She understood and comprehended what I was saying to the other girls and did what we routinely do. There was no fuss. So, I changed her diaper, put her into bed, gave her her medicine folowed by her nightcap and shut the lights. It was a moment. So, when others have their moments, mine will be slightly different. Simple. Not unique. Fortunately for me, writing them all down makes it easier to access.
Tuesday, October 9, 2012
Baby has NO Fear!
So we have this bounce house that is pretty small but we are to assume that it is one of the girls favorite "toys" to play with. When Eva was learning to walk, we would use it to teach her balance. She was very shaky and she would fall often but she would enjoy herself. Well, now, she is walking very well and is enjoying her toy too. I think that her older sister still gets a kick out of playing in it as well. You can actually hear her laughing with the noise distractions from the blower. She loves it and really, who wouldn't!?!?!
Dance with me
Eva is getting so much more comfortable with walking that she has taught herself to dance. It may have her own "style" but it is still a dance. I wonder which side of the family she got these moves from?
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