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In waiting room -
love the games for the kiddos |
So in the last two weeks, our house has managed to go through the stomach flu, which was followed be carpet cleaning and a bottle of Lysol, and now the remnants of strep throat. In Eva's case it was inevitable to miss the stomach flu but luckily for her (and me) she was not infested with vomiting. She did in fact miss so far the strep throat but now the that other three are almost through their amox, Eva's nose is running like sap tree. She has not been accompanied with a fever and yet her spirits are good. Except for doctors appointments, we are not leaving the house. It is a beautiful day today so I might try to open the windows and get some of these germs moving around. It must be a present from the leap year being a high of 68!
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| Still waiting, Abigail and her photographic eyes. |
Yesterday we paid a visit to the neurologist. It was just a follow up from our staycation. We were talking about the results from her EEG and he continued to thankfully say that she does not have signs of Epilepsy. We talked more about her abnormalities. It seemed that he was now learning more from me. I mentioned the statistics of 1 and every 16,000 have this particular chromosome disorder. We tend to believe differently. Here is my reasoning: From the Unique website (a non-for-profit organization that supports families with children having abnormal chromosome disorders) the have about 9000 members. Out of those families there are only 32 families that have a child with C17q. Do the math - that is only - .35%, not 35%, but .0035. There is no way that their prediction is correct. He also stated again the emphasis of Scott and I doing lab work to see which one of us has the abnormality in our genes. I again refused. Whats the point. Do we as a couple want to point the finger at each other the rest of our lives? I mean, if we were going to have more children (which neither one of us cannot) then we most definitely would. I would however like the other three girls tested so that way they would know whether they can share this similar experience with their offspring.
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| For reference purposes |
Tomorrow we take on yet another specialists. He is a infectious disease doctor that will discuss her immune system, or lack of. I am looking forward to see what or how we can keep Peanut continuously healthy. As of right now, I could not imagine a life without seizures. Maybe, just maybe the last five was the grand finale.
Yesterday we paid a visit to the neurologist. It was just a follow up from our staycation. We were talking about the results from her EEG and he continued to thankfully say that she does not have signs of Epilepsy. We talked more about her abnormalities. It seemed that he was now learning more from me. I mentioned the statistics of 1 and every 16,000 have this particular chromosome disorder. We tend to believe differently. Here is my reasoning: From the Unique website (a non-for-profit organization that supports families with children having abnormal chromosome disorders) the have about 9000 members. Out of those families there are only 32 families that have a child with C17q. Do the math - that is only - .35%, not 35%, but .0035. There is no way that their prediction is correct. He also stated again the emphasis of Scott and I doing lab work to see which one of us has the abnormality in our genes. I again refused. Whats the point. Do we as a couple want to point the finger at each other the rest of our lives? I mean, if we were going to have more children (which neither one of us cannot) then we most definitely would. I would however like the other three girls tested so that way they would know whether they can share this similar experience with their offspring.
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