It is official. We are in the starting processes for a Non for Profit organization! I can not be any more passionate and extremely excited on the opportunities for all the families affected by Koolen deVries Syndrome. I am pleased be the responses by families and seeing their support makes my efforts and the other three Board members efforts appreciated. I am also seeing a pouring amount of volunteer assistance within the organization when it becomes official.
Again, as I have posted this on facebook and through email, here is the link.
Supporting Families with Koolen Syndrome
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