Sunday, January 13, 2013

CSHCS Update

So yesterday, during our beautiful 64 degree weather, I went to retrieve the mail.  I was pretty excited to see that Eva's secondary insurance through the state had finally sent our new card for the year.  I tossed it in the garage and continued to be busy outside.  After four, when the games started, i went inside to go through the mail and opened my "new card".  Can you even guess the most horrific saying unimaginable coming from my mouth when the letter stated that Eva has been denied services after I went through the retched appeal process and she was receiving services last year! I swear, I will continue to fight.  They will not shut us down again.  I will keep fighting until I get that beeeeeeep........ ing approval letter and "new card" again.  And here is a very idiotic way of medical terms being used.  So what if what is is diagnosed with the name of  C17q21.31 micro deletion syndrome.  They consider a "syndrome" a mental disorder and they don't cover MENTAL disorders!  Then submitting the new name of Koolen Syndrome, it just got worse.  I apologize, I am just a little frustrated.
So, if any of you are medical professionals and could explain to me or actually would like to put in writing why genetic abnormalities are named syndromes (ie Downs Syndrome which is 100% covered by the state) I would be happy to submit it with my appeal within the next two weeks. 

Thank you in advance for one; reading about my aggravations and two; thinking of someone that could possibly help.  :)

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