Wednesday, May 30, 2012

Hearing Test Results and NYC

It has been too long since I have posted anything!  Summer vacation for the older kids is here and I had gone away to the east coast for a visit.  Lets get an update on little Eva.  On Thursday she had another hearing test at IDS.  This test ran much smoother than the others.  She did not need to be asleep but her almost two year old attention span got the best of everyone.  They did testing solely in the sound booth.  It was a basic test as before, sounds coming from either corner, stuffed animals moving in their Plexiglas cases, an assistant trying to keep her attention with random toys sitting in front of us. The ultimate result, she passed again.  The audiologist did ask if she could visit with Eva again in six months thinking that her focusing on a task, or in this case, a test would be more developed.
I am planning on going to the New York area for a Chromosome 17 gathering.  There will be other families there that are faced daily with this particular abnormality. I know that it will be a great experience for Eva and I and the information that I can gather from other families.   I can only imagine the excitement, knowledge, sadness, fear, and many other emotions that I can endure in such a small amount of time.  Excitement: meeting other families that can relate to our family; Knowledge: the best information can come from those who have already experienced our known (thankfully Eva will be one of the youngest C17 members); and Sadness: the word empathy comes to mind and so much more; Fear: of still not knowing answers that all parents want for their child, (can they become an independent adult?).




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