Talked to Sarah - genetics counselor for the University of Nebraska Genetics Center. She found three families that she will be contacting. These families also have a child(ren) that have C17q21.31. I can only hope that Sarah will sound as pleading and sincere to get these other people to keep in touch with. I also found out that there is a National Forum of Genetic Counselors. They can send out an all e-mail to all counselors to assist with abnormalities, references, information, ect. Nebraska has been the most useful staff I have dealt with.
University of Nebraska Medical Center
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