OT Chewy, aka "Gingerbread"
Pros: drooling almost ceases, physical stimuli at her discretion, oral stimulation, independence
Cons: She stopped talking to herself, drops on the floor, occasionally looses it but forgets about it, might get dependent upon it
http://www.amazon.com/gp/product/B00CIX8RTI?refRID=VZA2AKQWQJJQZ37Z4T7Z&ref_=pd_ys_c_rfy_rp_1
Tuesday, December 29, 2015
Monday, January 19, 2015
Preferred Tubing
What a great day. If I could change anything - well, it would be boots. Note to self: Eva and Elizabeth both need snow boots, not fashion boots. They are not waterproof. Good thing I am over loaded with precautionary extra items such as a full change of clothes for everyone. This for once came in handy.
Sunday, January 11, 2015
Seasonal Sick
Just a bit sick the past two weeks and just can't seem to shake this cold. It started about December 31. She went to see the doctor on January 2 and was put on antiviral medication for 5 days. We also continued to give her albuterol and the normal Tylenol/Motrin for fever and aches. Her cough was so croup-like and painful to listen to so I continued to give her the Motrin because I couldn't imagine how her little stomach muscles were from all that coughing. There was a point were we sat on the couch and she started coughing. I just grabbed her stomach and put pressure on her abs and she looked at me with these eyes of relief. That was the point when I could hear even my own mother's words come out of my mouth as I said "I wish I could just take that all away and be sick instead". Today, it read 36* on the thermometer and she really wanted to "play no, momma pleez play no?" (snow) I bundled her up and off we went. She loved ever minute, until I had to bring her inside. Not one drop came out of her nose nor a cough from her mouth. I think we all just needed some fresh air. Cabin fever can be so damaging...
Ironically, there was a table in the USA Today section from today's paper that compared the common cold to the flu. Here were the facts:
A Cold VS. the Flu: What's the Difference?
Because colds and the flu share the same symptoms, it can be hard to tell the difference between the two. Generally flu is worse than the common cold. How to determine which is which:
SYMPTOMS COMMON COLD FLU
Fever Rare Usual; can range from
100*-102*, can last 3-4 days
Headache Rare Common
Aches,pains light Usual; often severe
Fatigue, weakness Sometimes Usual; can last 2-3 weeks
Extreme exhaustion Never Usual; at beginning of illness
Stuffy nose, sneezing Common Sometimes
Sore Throat Common Sometimes
Cough Mild to moderate, Common, can
hacking cough become severe
TREATMENT Antihistamines & See Health care provider
Decongestants for antiviral medicines
PREVENTIONS wash your hands and avoid Get annual flu
touching your face vaccaination
Sources: FluView: Influenza Hospitalization Surveillance Network, Centers for Disease Control and Prevention
Ironically, there was a table in the USA Today section from today's paper that compared the common cold to the flu. Here were the facts:
A Cold VS. the Flu: What's the Difference?
Because colds and the flu share the same symptoms, it can be hard to tell the difference between the two. Generally flu is worse than the common cold. How to determine which is which:
SYMPTOMS COMMON COLD FLU
Fever Rare Usual; can range from
100*-102*, can last 3-4 days
Headache Rare Common
Aches,pains light Usual; often severe
Fatigue, weakness Sometimes Usual; can last 2-3 weeks
Extreme exhaustion Never Usual; at beginning of illness
Stuffy nose, sneezing Common Sometimes
Sore Throat Common Sometimes
Cough Mild to moderate, Common, can
hacking cough become severe
TREATMENT Antihistamines & See Health care provider
Decongestants for antiviral medicines
PREVENTIONS wash your hands and avoid Get annual flu
touching your face vaccaination
Sources: FluView: Influenza Hospitalization Surveillance Network, Centers for Disease Control and Prevention
Wednesday, December 10, 2014
Opthamologist & Orthopedic
Busy schedule this week...
Yesterday we met with a new opthamologist. She was greeted by an extremely large waiting room with just a few awaiting children & babies ahead of her. When we were called back, we started with the first nurse. I was asked to have Eva on my lap while she looked at repeating pictures on a screen that was placed on a shelf, about three feet above our head. But, she had to look at the mirror in front of her to do this task correctly. This was a challenging concept for her to grasp but as patient as the nurse was, she completed it.
After that, we called in an additional nurse to assist with inserting drops to dilate. We were then sent out to the waiting room for at least thirty minutes after which we were again called back into the patient's room. The lights were turned down low again and the doctor was covering her eyes, one by one, to see if her muscles responded to light differentiation.
Her conclusion was that her vision is currently 20/60 with a slight astigmatism. This is not something that is required to need aided correction.
Today we had a visit with the orthopedic. For background information, we have not seen her orthopedic since the scheduled follow up from the bilateral hip dysplacia in 2012. At this office, we were greeted by a completely overpopulated waiting room. This office holds all four of the pediatric orthopedic doctors that serve the metro area, and they have clinical visits for two days only a week. Busy was an understatement. We were told that Eva was going to get an updated x-ray of her hips before been seen. We watched as most of the waiting room dissipated into patient rooms and Eva was finally called. We had the x-ray done, without resistance, and was taken to the last empty room, a cast room. Ironically, it was the same room we were in when that retched frog cast taken off. Horrible, awful, disturbing memories.
The doctor came in and complimented how big and physically active she was. First, he showed me a picture of her x-ray.
He explained that the left ball on the hip is still lacking cartilage but is slowly regenerating. I had a few questions for him - one was her running ability. I notice that when she is running, her right leg swags outward. He said this is call genu valgum (knee knock). This is typical for children aged 3-6. Because of her age (4.5 yrs) I should not be concerned. If it continues after age six, there is a corrective surgery for this. I also asked about physical therapy. He stated that he can write a prescription that has nothing to do with her deletion whereby we can receive therapy through insurance again. Finally, I asked if he knew of any podiatrist or trades person that does shoe lifts without going through insurance. He only wished that he knew someone. We were scheduled for an appointment for 12 months out.
Information about genu valgum:
http://www.nlm.nih.gov/medlineplus/ency/article/001263.htm
| Eva's Dilation |
Her conclusion was that her vision is currently 20/60 with a slight astigmatism. This is not something that is required to need aided correction.
Today we had a visit with the orthopedic. For background information, we have not seen her orthopedic since the scheduled follow up from the bilateral hip dysplacia in 2012. At this office, we were greeted by a completely overpopulated waiting room. This office holds all four of the pediatric orthopedic doctors that serve the metro area, and they have clinical visits for two days only a week. Busy was an understatement. We were told that Eva was going to get an updated x-ray of her hips before been seen. We watched as most of the waiting room dissipated into patient rooms and Eva was finally called. We had the x-ray done, without resistance, and was taken to the last empty room, a cast room. Ironically, it was the same room we were in when that retched frog cast taken off. Horrible, awful, disturbing memories.
He explained that the left ball on the hip is still lacking cartilage but is slowly regenerating. I had a few questions for him - one was her running ability. I notice that when she is running, her right leg swags outward. He said this is call genu valgum (knee knock). This is typical for children aged 3-6. Because of her age (4.5 yrs) I should not be concerned. If it continues after age six, there is a corrective surgery for this. I also asked about physical therapy. He stated that he can write a prescription that has nothing to do with her deletion whereby we can receive therapy through insurance again. Finally, I asked if he knew of any podiatrist or trades person that does shoe lifts without going through insurance. He only wished that he knew someone. We were scheduled for an appointment for 12 months out.
Information about genu valgum:
http://www.nlm.nih.gov/medlineplus/ency/article/001263.htm
Monday, October 6, 2014
District Star
I can't believe it has been three months since my last post. What a slacker. Well, I can not report much except that we had attended another awesome KDVS Gathering. I was horrible with no camera at all available so I had to rely on others for pictures. Luckily I was able to create a custom photo book through my KDVS Family support. Thank you all for that!!!
We also took an amazing trip out west in July and school is already at the 9 week progress report with conferences. And, here is Eva, on the District websites rolling photos, showing her obvious amazing physical ability skills... Her facial expression is priceless. Any ideas what she is thinking?
http://www.brownsburg.k12.in.us/
I have much to share about her progress and will do so soon.
We also took an amazing trip out west in July and school is already at the 9 week progress report with conferences. And, here is Eva, on the District websites rolling photos, showing her obvious amazing physical ability skills... Her facial expression is priceless. Any ideas what she is thinking?
http://www.brownsburg.k12.in.us/
I have much to share about her progress and will do so soon.
Thursday, June 26, 2014
Surgeons update
Monday, June 2, 2014
Dedication to our Oldest Cousin



If Eva could answer me this question - "what would be three things you want to do today?" I almost guarantee if she could answer me, she would say swimming pool, horse, and park. Well, Sunday, she came as close to perfect as she could get. Her cousin was graduating from high school. His open house was just outside Columbus Ohio. We made it a day trip and had a very nice visit. At the property, there was so much food Eva loved, especially the strawberries, chips and cake. There was a gravity challenged hammock that got the best out of Eva but really enjoyed it after she learned to hold on. There was a huge tree swing (or her park). They had a small pool with a slide for the little ones and to top it off, they had horse rides. Sometimes during our afternoon, Eva didn't know which she wanted to go to. She was so over stimulated and loving every minute of it. 
Life was wonderful. Being around friends and family for a sunny afternoon was a definitely a treat. Congratulations Daniel, we are so proud of what you have accomplished and what you will bring for your future. A huge thank you to Kelley and Brantley for sharing their property and creating such a pleasant afternoon.
Post surgery update
On May 22, Eva had her nevus removed. She had three, one on each leg around her knee and the third on the bottom of her foot.
We arrived at the hospital by six. She was in a very good mood too. After we arrived we did the basic check in process. Time went by swiftly and she was entertained by the life skills nurse. After both the plastic surgeon had circled her spots and the anesthesiologist gave a visit, the last nurse came and pushed her away in the car. She was very willing to go with her even though the picture doesn't seem to support that theory. The procedure lasted about 50 minutes and the nurse told me that she was in recovery. Then her surgeon came and said that she did great. They will do a biopsy of the spots and I will know by next Thursday. Either way, they will call me. We also have to visit his office within two weeks and then in six months. I received home care instructions from him and we were finished. Simple.
After about five minutes, the nurse brought Eva back to me in her arms. She was in and out of consciousness. When she was out, she was snugly. When she would come to she was extremely physical and very irritable. She would whine, kick, punch, and have almost uncontrollable body movement. If I didn't know any better, I would think that she was having mini five to seven seizures. It was a just a little concerned about her actions. About ten minutes of this and the nurse came in with dismissal paperwork. She was explaining to me what I needed to do at home while I was wrestling Eva, at that moment. I requested assistance to the car. The nurse asked if she could carry Eva. I told her that was fine as long as Eva would not act like she just was with me. Well, instantly, she was a calm, sweet, recovering three year old that loved this new stranger. Her demeanor was completely different. We walked through half the hospital to our vehicle and it seemed like everything was back to normal. I went to get the car while the nurse and Eva waited at the entrance. I put Eva in the car and we went home. No more struggles. No more hitting. I had Eva back and it took a nurse to make that happen, at least that's what I feel it was.
We got home and she was wanting to go outside and play. I did not let her go, I felt as though her legs and foot were still numb and I didn't want her to unknowingly hurt herself. She ate lunch like a bird and took a four hour nap.The next day, she woke up not wanting to walk on her heel and kept saying that her boo boo was ouchy. I gave her some ibuprofen and took her to school. She was instantly back into her student mode when we arrived and our normalcy continues.
Melonoma Follow-up
Eva had her procedure 11 days ago and it went smoothly. This past Friday we got the phone message from the nurse sounding a bit distressed that we were not available but that we needed to call for her biopsy results before closing time at 2pm. When I was checking the voicemail message, it was after four.
Today I called and I found out that the mole on her right thigh a A-typical features. This means that there is a possibility of future return and regrowth, or profound and confirmed melanoma. the surgeon is sending over the slides to the dermatologist office for further review and confirmation. We should hear back from this office within two weeks.
Also today, Eva had Field Day at school. She was walking from the side walk towards the pavement and missed the step. ultimately falling on her knee, shin, and palms. She took it like a trooper but her knee was bleeding, and did not stop. I took her to the restroom to clean it out and put a band aid on it and noticed that the gash on her knee was the size of a pea. Seriously, it was super gross to look at and was really deep. I asked the Director for some antibiotic. We went home and I decided to call the doctors office to get it checked out. I figured a copay was cheaper than a 20% ER visit. After talking with the nurse, I figured out that this gash wasn't just from the fall but actually she had reopened one of her scars from the procedure. That totally explained the large gash. After I got home, I called the surgeon's office and they just told me to cover it with antibiotic and a band aid, keep it clean and covered.
Today I called and I found out that the mole on her right thigh a A-typical features. This means that there is a possibility of future return and regrowth, or profound and confirmed melanoma. the surgeon is sending over the slides to the dermatologist office for further review and confirmation. We should hear back from this office within two weeks.
Also today, Eva had Field Day at school. She was walking from the side walk towards the pavement and missed the step. ultimately falling on her knee, shin, and palms. She took it like a trooper but her knee was bleeding, and did not stop. I took her to the restroom to clean it out and put a band aid on it and noticed that the gash on her knee was the size of a pea. Seriously, it was super gross to look at and was really deep. I asked the Director for some antibiotic. We went home and I decided to call the doctors office to get it checked out. I figured a copay was cheaper than a 20% ER visit. After talking with the nurse, I figured out that this gash wasn't just from the fall but actually she had reopened one of her scars from the procedure. That totally explained the large gash. After I got home, I called the surgeon's office and they just told me to cover it with antibiotic and a band aid, keep it clean and covered.
Wednesday, May 21, 2014
Insurance Battle
I have been giving words of encouragement to parents all over the world when it comes to getting all that you can for your child. I have been telling them that as KDVS parent, you are their voice. If you want something for your child, then fight for it. Now, unfortunately, I must admit, it is our turn.
Eva is no longer receiving any type of therapy services. All of the sessions allowed have been used. She was given 60 per diagnosis. That's right, 60 visits for KDVS will ultimately make Eva's ability level parallel with her peers. 60. Speech, physical, and occupational is no longer provided, ever.
I am furious that this has happened and this is the first chapter of my fight against our insurance (or lack of) company.
Eva is no longer receiving any type of therapy services. All of the sessions allowed have been used. She was given 60 per diagnosis. That's right, 60 visits for KDVS will ultimately make Eva's ability level parallel with her peers. 60. Speech, physical, and occupational is no longer provided, ever.
I am furious that this has happened and this is the first chapter of my fight against our insurance (or lack of) company.
Sunday, April 27, 2014
Horse Riding
Friday, April 25, 2014
Our Last Bunny

Easter came and went again this year with absolutely beautiful weather. When we were looking for our many candy filled plastic eggs, but Eva's attention span lasted through only about eight eggs and she was done. She really enjoyed the playset the best. 
We did manage to get her to wear the bunny costume. She looked just too cute. I even video recorded her running to the playset and her little bunny tail just wobbled back and forth with every step. It is probably one size to big for her but next year it should be perfect. Dinner was excellent and we enjoyed our dessert too... Thanks Easter bunny!
Dermatology Follow-up
Good news - Eva has benign acquired nevus(moles). However, our doctor explained that these moles can become malignant over time so she recommends that they all be removed, the one on her foot and legs. We have been referred to a pediatric plastic surgeon to get his recommendations and to get this procedure done in a timely matter. We have some serious traveling plans in July and I will not let the procedure interrupt our plans.
Our appointment is the second week of May with the surgeon. I hope our consultation will go in our favor.
One thing that I learned from the dermatologist is the ABCDEs of melanoma. These signs are:
A:Asymmetry - One half unlike the other half
B: Border - Irregular, scalloped or poorly defined border.
C: Color - Varied from one area to another; shades of tan & brown, black; sometimes white, red, or blue.
D: Diameter - While melanomas usually are greater than 6mm (size of a pencil eraser) when diagnosed, they can be smaller.
E: Evolving - A mole or skin lesion that looks different from the rest or is changing in size, shape or color.
"Benign" refers to a condition, tumor, or growth that is not cancerous. This means that it does not spread to other parts of the body. It does not change or destroy nearby tissue. Sometimes, a condition is called benign to suggest it is not dangerous or serious. (1)
While melanoma is rare in young children, it is helpful for parents to know that there are different types of moles. Most moles are harmless, but there are a few types that should be examined by a dermatologist just to be sure. (2)
References:
Monday, April 14, 2014
Concerned spots
In the past year or so, I have talked with parents of KDVS children that have been diagnosed and treated with melanoma. I always felt so sympathetic of what other parents have to experience and feel fortunate with Eva's minimal KDVS symptoms. That spot was just smaller than a pencil eraser then one day, it doubled in size and had two babies. It was just strange so I made an appointment.
At the doctors office last week, our doctor said that she was not at all worried about the armpit or the knee. Although she was concerned with the one on her foot. She said that it was a dark, deep discoloration that should be observed by a dermatologist. I asked her what was her level of concern. She answered "40%". She also said that the dermatologist office has to call us and schedule an appointment. I know what that meant. Normally, a new patient visit takes about 4-6 weeks or much longer. The next day, their office called me, yes the next day. I was shocked. We made an appointment for the 23rd of this month. I think that all Kool Kids beat the odds so I am just going to assume that this spot will most likely be removed (and since there had been such a quick response, my doctor's 40% could just possibly be higher). I am hopeful to post a good response from our new doctors visit next week. Wish us luck...
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| Dark spot on left heel area |
Thursday, February 20, 2014
Wonderful Warmer Weather
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| "driving home" |
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| Eva running! |
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| Focusing on coloring the cow... @ winery! |
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| Abigail & Victoria |
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| Victoria & Elizabeth |
That's right, I took them both to their first winery. To my surprise, they had a piano that the kids could practice their finger stomping followed by a keepable coloring book and crayons. We made a few more stops and made it home just in time to put Victoria's scooter together before she got off the bus. Now I usually don't ride the kids toys but this particular scooter was really cool (and obviously I only know that from experience making sure it was safe to ride, of course!) We had a blast outside. Eva even got a chance to step onto the scooter, got her balance, then stepped off. She was much more excited about playing in the snow with the shovels than the scooter. I know that this weather won't last for long so we took all that we could. I guess we all have a spring fever. Friday, February 14, 2014
(Not so) Terrific three's!


We have had some good and not so good changes... I am one who likes to end on a good note so let's start with the not so goods. Eva now is in a stage which most know as "terrible twos" but educators call it a developmental milestone. She has started to show more dislikes. For example, when we leave from school to go to therapy, she refuses to eat knowing that we are on our way. She also is choosing to not take naps anymore. So, I actually found this out a hard way. I thought she was sleeping but when I heard some noise I found her actually playing... With her powder. I also found out that baby powder can potentially ruin a vacuum. Good thing we carried a warranty.
Eva is also also being a bit more picky with her foods she chooses to consume. When we have a meal, let's say its carrots, potatoes and chicken, she will only eat three maybe four bites of the potato, and that's it. She will not even try the others. I am starting to supplement at night now with milk and carnation. 
Let's now focus on the good. No matter what the weather, she loves going outside. When it is at least 25 degrees, we all get our snow gear on and head to the park for sledding. Eva loves to go down the hills by herself without a sled, which is just super cute. We stay for about an hour or two and then head home. She just loves all of it. One day when it was just a little to cold for her to be out but her sisters insisted on going out, so I decided to stay inside with her. When we were finished with a book, she stayed in her room to play. When she came out of her room, she obviously was trying to tell me something... and then showed me... I understand that she now has the concept of our family motto "what's fair for one is fair for all". I love the fact that she completely undressed herself (not such a great quality) but found a hat and a snow bibs to put on. She is just showing us her great memory and comprehensive skills. I love happy endings. :)Sunday, January 19, 2014
No Hair Stress
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| Skeptical yet curious |
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We went to Edy's to get all of Eva's hair cut. Let me just set the scene for a moment. We pulled into the lot and their was one spot left. We parked, got out of the car and went into the back door. Now, Eva had been here before many of times watching me, dad and sisters get their hair cut. So we are going in and a gentleman is filling peanut M&Ms into the nail area candy jar for patrons, the nail artist is cleaning her supplies at the sink and then around the corner, an elderly lady is getting her hair permed. All three hair consultants were talking with each other, two did not have clients. We took our jackets off and placed them onto the waiting chairs. Edy asked me if I thought Eva would have any trouble and of course I said "no, she'll be just fine". She had asked Shilah to cut Eva's hair. I looked at Eva and said "come on, lets get your hair cut" in such a peppy, cheerleader kind of fashion. She looked at me, the booster in the chair, turned around and walked to the nail area. Then proceeded to squat down in the corner. Their was no convincing her that getting a hair cut was good. Edy then decided to sidetrack her thinking and was asked to go get a piece of candy. She shyfully walked up to that gentlemen, looked at him and signed /said "ee, peez". He said 'oh, you want some candy, I have plenty.' She took one, only one red piece. Then when she turned around, she saw that I was in the chair now and asking her to come sit with me. After just a little hesitation, she joined me. Shilah placed a smock around me and then around her then grabbed her water bottle and just started spraying Eva's head. It startled her so bad that Eva hit the bottom of my lip with her head. Such a sensory kiddo. Finally, thank goodness, she started cutting. Eva sat on my lap and watched in the mirror the whole time and never moved, ever. It was awesome. When she was finished, she got down off of my lap and walked right up to the gentleman with the candy and signed/said "mo, peez". She reached in that candy and grabbed about five. All in all, we got her hair all one length now - hooray!
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| "Say Cheese" |
Sunday, January 5, 2014
Our Snow Day
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| Love at first snow... |
Saturday, December 28, 2013
Little Gifts
Another Christmas has come and gone, this year rather quickly though. Eva definitely got the hang of presents, and wanted more. She loved the fact that she understood what unwrapping something is, whether it was hers or not. She just simply loved taking paper off of gifts. She would even sneak downstairs to the tree and open a gift, bring it upstairs and had the look of accomplishment while saying "mama, mama, pehpeh" and handing me the torn apart paper. I have to admit, she will not be selected as an honorary member of a recycling club this year but she was sure cute.
One day before the holiday, there was a whole roll of wrapping paper left out downstairs. She had retrieved it (by shear determination and her own initiative) and brought it upstairs. Now, by the time it made it's way to the hallway, the cardboard tubing was on the stairs and she was dragging what was left of the whole roll of paper to the entryway. Well, what she does next I just couldn't help but record...
Now, I have to reflect back to what I have seen and how I have reacted to her "cuteness". So, I know I am expected to be more firm when it comes to this type of activity because if it was one of the other girls... I just feel that she can accomplish her motor skills, her ability of a "every minute personal goal" and stay so focus on one task. I mean, for example, Abigail had a rubber glove. Eva found it and sat in her room for over thirty minutes putting the glove onto her right hand, then finding the thumb, then taking it off and placing it onto her left hand and repeating the process, for thirty minutes. Her shirt was the only victim with all of the 'focus drooling' done in the process. I feel that she needs positive reinforcement when it comes to accomplishing her goals but, not when it comes to destroying a whole roll of wrapping paper. Next year, I will not make it seem so cute.
Well, it was a great holiday all in all. We all learned a bit more about Eva and her abilities and how we need to continue encouraging her daily, as always. She tends to amaze us every day!
One day before the holiday, there was a whole roll of wrapping paper left out downstairs. She had retrieved it (by shear determination and her own initiative) and brought it upstairs. Now, by the time it made it's way to the hallway, the cardboard tubing was on the stairs and she was dragging what was left of the whole roll of paper to the entryway. Well, what she does next I just couldn't help but record...
Now, I have to reflect back to what I have seen and how I have reacted to her "cuteness". So, I know I am expected to be more firm when it comes to this type of activity because if it was one of the other girls... I just feel that she can accomplish her motor skills, her ability of a "every minute personal goal" and stay so focus on one task. I mean, for example, Abigail had a rubber glove. Eva found it and sat in her room for over thirty minutes putting the glove onto her right hand, then finding the thumb, then taking it off and placing it onto her left hand and repeating the process, for thirty minutes. Her shirt was the only victim with all of the 'focus drooling' done in the process. I feel that she needs positive reinforcement when it comes to accomplishing her goals but, not when it comes to destroying a whole roll of wrapping paper. Next year, I will not make it seem so cute.
Well, it was a great holiday all in all. We all learned a bit more about Eva and her abilities and how we need to continue encouraging her daily, as always. She tends to amaze us every day!
Saturday, December 21, 2013
Holiday Cheer
We have been very busy this holiday. First we started with a visit from Jan. That was very exciting to see our Colorado Kool mom and friend. It really amazes me that Eva can be so open with people. I mean we were invited to Jan's parents house. She was extremely sociable even with the dog. No signs of shyness at all.
We also had a wonderful breakfast with Santa. Our first Santa visit was short but just long enough. We had our pictures taken and Eva was again not shy. She went right up to him and put her arms up into the air for him to pick her up. One she was there all she could do was stare in awe. I only wish I could read her mind to see what she was thinking. Maybe she was so intrigued with his beard and it actually touching her and I think if Santa was more well groomed, she wouldn't be so worried about it.
We also have to have our Bowling with Santa. This is exciting for more the older girls than the younger ones. But either way, Santa was there again and Eva did a great job getting up onto his lap for more captured moments of time. Here is a great opportunity to talk about her improvement in speech. She is continuously going twice a week for therapy. She is working on two word sentences, or just two words said together as in bye-bye mama or nie-nie dada. We are also working on the ending continent sounds like t, ck, or m. And here is something really exciting, before this accomplishment she has called all of her sisters Abu. Now, Abigail is Abi while the others are still Abu. We're definitely making positive progress!
I am not sure if this is an Eva update but it is exciting for our family. SFKDVS is now officially a tax exempt organization. This means that we can now start assisting other families after we receive donations and federal/state/ & private funds/grants. I feel that this will be so rewarding for everyone.
Here is another accomplishment happening while I am writing this. Eva is very self occupied whether it is playing with toys, looking at books or focusing on something else. Right now, she is emptying her backpack that always contains extra clothing for school. She has put on her jacket, one sock half on up over her toes and the extra pants in pulled up one leg. Now, she is starting to take it all off. First the sock, then the pants and finally the jacket. All is now being placed back into the backpack with the zipper closed. All of this was done in about five minutes. Six months ago these motor skills were not there nor were they attempted. I would assume she received some of these skills from school. She loves school. Even when she was out for three days with a bad cold, she was ready to go to school. Her classmates are very influential and her two teachers are so patient with the children. These next two weeks with her being off from school I hope will go by fast. All of our children need their schedule and routines. I will just have to remember to keep something going on daily. Happy Holidays!
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