Tuesday, December 29, 2015

Chewy Skool

OT Chewy, aka "Gingerbread"

Pros: drooling almost ceases, physical stimuli at her discretion, oral stimulation, independence

Cons: She stopped talking to herself, drops on the floor, occasionally looses it but forgets about it, might get dependent upon it

http://www.amazon.com/gp/product/B00CIX8RTI?refRID=VZA2AKQWQJJQZ37Z4T7Z&ref_=pd_ys_c_rfy_rp_1

Monday, January 19, 2015

Preferred Tubing


Great adventures come to mind when you least expect them.  On Sunday morning, one of the girls were talking about sledding.  I then pondered the idea of sledding this season, no snow, no hills, yadda, yadda.  Snow tubing.  I found a few within the four hour range some were way to pricey.  So, I found one in Ohio.  Oh my gosh.  It looked awesome.  So, I proposed the idea at dinner that night and the girls' jaws dropped open.  (That's a good sign)  The next morning we left.
This place was simple.  Four lanes for tubes, automatic pulley system up the hill.  This was just perfect for everyone, especially Eva.  She was required to be in her own tube the whole time.  She did awesome and loved it the first six times going down.  She did not like when we all did the "train" and put Eva in the middle, but, I really wanted a video.  It turned out good and I am glad that she will be able to watch it for future reference.  For now, we will just look at some pictures. 
What a great day.  If I could change anything - well, it would be boots. Note to self:  Eva and Elizabeth both need snow boots, not fashion boots.  They are not waterproof.  Good thing I am over loaded with precautionary extra items such as a full change of clothes for everyone.  This for once came in handy. 


 

Sunday, January 11, 2015

Seasonal Sick

Just a bit sick the past two weeks and just can't seem to shake this cold.  It started about December 31.  She went to see the doctor on January 2 and was put on antiviral medication for 5 days.  We also continued to give her albuterol and the normal Tylenol/Motrin for fever and aches.  Her cough was so croup-like and painful to listen to so I continued to give her the Motrin because I couldn't imagine how her little stomach muscles were from all that coughing.  There was a point were we sat on the couch and she started coughing.  I just grabbed her stomach and put pressure on her abs and she looked at me with these eyes of relief.  That was the point when I could hear even my own mother's words come out of my mouth as I said "I wish I could just take that all away and be sick instead".  Today, it read 36* on the thermometer and she really wanted to "play no, momma pleez play no?" (snow) I bundled her up and off we went.  She loved ever minute, until I had to bring her inside.  Not one drop came out of her nose nor a cough from her mouth.  I think we all just needed some fresh air. Cabin fever can be so damaging...

Ironically, there was a table in the USA Today section from today's paper that compared the common cold to the flu.  Here were the facts:

A Cold VS. the Flu: What's the Difference?
Because colds and the flu share the same symptoms, it can be hard to tell the difference between the two.  Generally flu is worse than the common cold.  How to determine which is which:

SYMPTOMS                   COMMON COLD                             FLU
Fever                              Rare                                                  Usual; can range from
                                                                                                 100*-102*, can last 3-4 days
Headache                      Rare                                                    Common
Aches,pains                   light                                                   Usual; often severe
Fatigue, weakness        Sometimes                                           Usual; can last 2-3 weeks
Extreme exhaustion      Never                                                    Usual; at beginning of illness
Stuffy nose, sneezing     Common                                              Sometimes
Sore Throat                   Common                                               Sometimes
Cough                           Mild to moderate,                                 Common, can
                                       hacking cough                                       become severe

TREATMENT               Antihistamines &                                  See Health care provider
                                      Decongestants                                       for antiviral medicines
PREVENTIONS            wash your hands and avoid                 Get annual flu 
                                      touching your face                                 vaccaination 

Sources: FluView: Influenza Hospitalization Surveillance Network, Centers for Disease Control and Prevention

Wednesday, December 10, 2014

Opthamologist & Orthopedic

Busy schedule this week... 

Eva's Dilation
Yesterday we met with a new opthamologist.  She was greeted by an extremely large waiting room with just a few awaiting children & babies ahead of her.  When we were called back, we started with the first nurse.  I was asked to have Eva on my lap while she looked at repeating pictures on a screen that was placed on a shelf, about three feet above our head.  But, she had to look at the mirror in front of her to do this task correctly. This was a challenging concept for her to grasp but as patient as the nurse was, she completed it. 
After that, we called in an additional nurse to assist with inserting drops to dilate.  We were then sent out to the waiting room for at least thirty minutes after which we were again called back into the patient's room.  The lights were turned down low again and the doctor was covering her eyes, one by one, to see if her muscles responded to light differentiation. 
Her conclusion was that her vision is currently 20/60 with a slight astigmatism.  This is not something that is required to need aided correction. 



Today we had a visit with the orthopedic.  For background information, we have not seen her orthopedic since the scheduled follow up from the bilateral hip dysplacia in 2012.  At this office, we were greeted by a completely overpopulated waiting room.  This office holds all four of the pediatric orthopedic doctors that serve the metro area, and they have clinical visits for two days only a week.  Busy was an understatement.  We were told that Eva was going to get an updated x-ray of her hips before been seen.  We watched as most of the waiting room dissipated into patient rooms and Eva was finally called.  We had the x-ray done, without resistance, and was taken to the last empty room, a cast room.  Ironically, it was the same room we were in when that retched frog cast taken off. Horrible, awful, disturbing memories. 

The doctor came in and complimented how big and physically active she was.   First, he showed me a picture of her x-ray. 
He explained that the left ball on the hip is still lacking cartilage but is slowly regenerating.  I had a few questions for him - one was her running ability.  I notice that when she is running, her right leg swags outward.  He said this is call genu valgum (knee knock).  This is typical for children aged 3-6.  Because of her age (4.5 yrs) I should not be concerned.  If it continues after age six, there is a corrective surgery for this.  I also asked about physical therapy. He stated that he can write a prescription that has nothing to do with her deletion whereby we can receive therapy through insurance again.  Finally, I asked if he knew of any podiatrist or trades person that does shoe lifts without going through insurance.  He only wished that he knew someone.  We were scheduled for an appointment for 12 months out. 

Information about genu valgum:
http://www.nlm.nih.gov/medlineplus/ency/article/001263.htm

Monday, October 6, 2014

District Star

I can't believe it has been three months since my last post.  What a slacker.  Well, I can not report much except that we had attended another awesome KDVS Gathering.  I was horrible with no camera at all available so I had to rely on others for pictures.  Luckily I was able to create a custom photo book through my KDVS Family support.  Thank you all for that!!!

We also took an amazing trip out west in July and school is already at the 9 week progress report with conferences.  And, here is Eva, on the District websites rolling photos, showing her obvious amazing physical ability skills... Her facial expression is priceless. Any ideas what she is thinking?
 http://www.brownsburg.k12.in.us/

I have much to share about her progress and will do so soon. 

Thursday, June 26, 2014

Surgeons update

6 weeks after
We had our appointment on Tuesday.  Our second opinion came back at a negative. So as for now, Eva does not have melanoma. She will be seen every six months unless more markings appear.  Biopsy results are benign!
Before 

Monday, June 2, 2014

Dedication to our Oldest Cousin

If Eva could answer me this question - "what would be three things you want to do today?" I almost guarantee if she could answer me, she would say swimming pool, horse, and park. Well, Sunday, she came as close to perfect as she could get.  Her cousin was graduating from high school. His open house was just outside Columbus Ohio.  We made it a day trip and had a very nice visit.  At the property, there was so much food Eva loved, especially the strawberries, chips and cake.  There was a gravity challenged hammock that got the best out of Eva but really enjoyed it after she learned to hold on.  There was a huge tree swing (or her park).  They had a small pool with a slide for the little ones and to top it off, they had horse rides.  Sometimes during our afternoon, Eva didn't know which she wanted to go to.  She was so over stimulated and loving every minute of it. 
 Life was wonderful.  Being around friends and family for a sunny afternoon was a definitely a treat. 
Congratulations Daniel, we are so proud of what you have accomplished and what you will bring for your future.  A huge thank you to Kelley and Brantley for sharing their property and creating such a pleasant afternoon.